First, a quick update: I did make my chicken, brussels sprouts and potatoes last night, and they were delicious. And I made my chicken and avocado sandwich to bring to work today, too. So far, so good. (Though I still didn't really sleep.)
This week I'm tackling the massive red-tape-and-paperwork kerfuffle that is the Trillium Drug Program. This is the provincial government assistance program that covers the cost of medication for people without adequate drug plans, which will be me in September when I start school again. In many ways, it's a great program, but unfortunately for me, Enbrel is not on the list of drugs that are automatically covered. Thus the red tape and paperwork.
If you've been reading my blog for a while, you'll know that the last time I did this it took almost a year and I ended up going for four pretty awful weeks without Enbrel. They insisted I try a massive dose of mtx (30 mg - barf), Sulfasalazine, and Plaquenil before they'd conceed that I actually needed the drug I'd already been taking for 5 years. I hobbled around the house, asking people to cut my food, button my coat, dial the phone. I was so depressed.
Through all of this, my rheumatologist and her nurse practitioner were amazing. They worked so hard for me and kept in almost daily touch to see how I was feeling off the drug. When I met with my doctor in person after the sixth rejection, I'd never seen her so riled up. Despite everything, I always knew they had my back, and that made a world of difference.
My relationship with my rheumatologist has been different since then. Although I liked her a great deal before, I feel closer to her now. She's seen me at my absolute worst, and I've seen how far she'll go for her patients.
This time, they're already back on the job and meanwhile have gotten Enbrel's Enliven Services to agree to "bridge" me (provide free Enbrel for the duration of any gap between losing my workplace insurance and getting provincial coverage).
So, I'm a little nervous about starting this whole process again, but I know she's in my corner, and that makes me feel a whole lot better.