Tuesday, June 15, 2010

Noise

It was my regular 6-month ICD interrogation. I go in, lie down and chatter with thenurses while a computer communicates with my defibrillator, gathering information on what it’s recorded or done over the months since my last check-up. It’s easy and usually uneventful.

As I lay there this morning, the nurse furrowed her brow at the screen.

“What were you doing on December 13th at 9:30 in the morning?” she asked.

I had no idea, of course, but apparently my device recorded a 42-second run of atrial fibrillation.

“It’s definitely not a-fib,” she said. “It’s noise on your lead.”

“Noise?” I asked.

“Something big happened to your device. If you were a man, I’d have said you must have been using a jackhammer. Or if your device were any older, I’d be worried about a lead fracture.”

I asked how she knew it wasn’t actually a-fib if the device said it was. “I just do,” was her answer.

She made some phone calls, informing me I’d need a chest x-ray and that the doctor on call would want to see me. I waited on the bed, thinking I’d call into work and let them know I’d be later than originally thought.

But then the doctor walked in. I'd never seen him in my life. Barely glancing at the screen, he said, "you're fine."

The nurse seemed surprised. She asked if he was sure, and whether he didn’t want a chest x-ray.

“No. She’s fine.”

“Are you really sure?” she asked again.

He looked at me this time. “You can go home,” he said.

And then he left. Maybe "ran off" would be more accurate.

The nurse looked at me.

"I guess you can go,” she shrugged.

**

What the hell?

I did leave, but I left feeling irritated and unsatisfied.

Patients, have you been in a situation like this? Doctors, why oh why do you contradict nurses (or other doctors) without explaining yourselves? Should I have been more assertive? Should I have demanded an explanation? I probably shouldn't worry about it, but I'm always wary of crossing the line into annoying-hypochondriac-patient territory. For now, I've just decided to wait and ask Dr. Cufflinks about it when I see him.

I know these people are busy, and I also know they don’t always have all the answers. But if you just don't know, or if you have a good reason for disagreeing with another care provider, then tell me. This is the kind of thing that drives people to Dr. Google.

3 comments:

Anonymous said...

Helen,

So weird. I just had a pacemaker appointment just like this. Pretty much. Except I asked for a holter because I kept getting tachycardia that caused me to lie on my couch in a state of wiltedness. My original cardiologist (who is now in another state), diagnosed me with atrial tachycardia because my pacemaker recorded it. My current EP doc says I don't have that, that it's sinus tachycardia. Yet I continue to have symptoms.

Anyways. My holter records "undersensing" which I google and discover the pacer is turning on too much. Meanwhile I'm concerned I shouldn't drive (in case it's not turning on), and my Cardio. NP tells me worst case scenario I'll "need a new one." A pacemaker that is. Great.

So I'm quite nervous. My EP doc walks in the room, tells me I have such and such pacemaker syndrome related to anxiety, because I pushed the recording BUTTON too much and walks out. Meanwhile I'm pretty sure my lightheadedness (which wasn't heart related apparently) was probably my usual, also weird, migraine aura.

Anyways, New EP doc proceeds to reprogram my pacer. Tell me it's not a big deal. When asked states that I have had 8 episodes of "sinus tachycardia" which apparently looks the same as Atrial Tachycardia on my printout...and then tells me again it isn't a big deal. Then he reviews my meds and realizes I am taking wicked high amount of a calcium channel blocker to control tachycardia, along with extra a take for break through....yeah.

Anyways. The good news is I think maybe the lightheadedness was caused by the pacer which was turning on too much, as I'm felt really good for the three weeks sense.

But I agree...I hate it when they do that. And you know what? They asked me to press that button when I got "symptoms." I wasn't saying they had to be my heart I was just saying they might be. Grrr.

Oh, and by the way, the tachycardia (the reason why I got the holter) didn't happen the whole time I had it on.

Melissa

Helen said...

Melissa - how frustrating! My doctors contradict each other frequently and I never know quite what to think. It's ok if they do - but I'd like them to explain why they don't agree so that I can start to make up my own mind about things.

So confusing about the tachycardia! I'm glad you're feeling better, though.

Helen

Anonymous said...

Helen,

Hey, thanks for the note! Sorry to go off on a vent like that. Mostly I really respect my doctors, I just have this fear of being sick, and being told that I'm fine. I almost didn't get a pacemaker because my cardiologist thought I was too young to have the problems I do.

I like being able to make up my own mind about things too. One of my doctors once said "You seem to have your own opinion about this!" And I was like...um yes, I do. Imagine that!

You take care. It's nice knowing someone else young who deals with the weird heart crap.

Melissa