Wednesday, April 20, 2011

Illness in the news

Dr. Sneakers is something of a media star (at least, in what I imagine is the very small world of cardiac electrophysiology). He's well known and respected, and so he gives frequent interviews and soundbites on related topics when they come up in the news. This morning I awoke to a full article in one of our national papers entitled "Maintenance of Implanted Defibrillators Linked to Complications", featuring good old Dr. S as the man behind the research. I wasn't looking for it. I wasn't even thinking about it, but there he was.

His study revealed that 1 in 25 patients experienced complications - some of which he calls "clinically devastating" - after having their defibrillator batteries changed. Lovely. Some of the other points in the article (for instance, that complications occurred most frequently in hospitals that performed the fewest surgeries) keep the thing from sounding too alarming.

Still, there's nothing like seeing your doctor in the paper, revealing to the world some newly discovered risk that applies to you. Of course it's good that these issues are being covered, and it's beyond great to have a doctor who's so widely respected and who's clearly at the forefront of ICD research. But it's not always fun to read about.

My usual approach to the ICD is that I've made my decision, and I'm past the point of trawling the internet for risk statistics and scary stories. I mean, I can't just decide I don't like it and dig the thing out. Maybe when it's time to change my own battery, I'll go back into research mode, but not now. Not when the little guy is snug in there with a healthy battery and, happily, no apparent desire to cause trouble.

What about you? Do you keep your eye on the latest research into the treatment you've chosen, or do you decide that, once you've made the difficult decision and accepted the risks, you're not going to worry? Then there's all the research into the disease itself, whether you have RA, cardiac issues, or something else. Have you always got your ear to the ground, or do you push ahead with your life and figure your doctor will tell you when something big happens?

Sometimes I'd rather just bumble along, pleasantly ignorant, and leave all that stuff to my doctors.

2 comments:

britta said...

Lately, I have been playing the ignorant game. It was fun! Until it caught up with me, and then I got hit with a severe case of exhaustion!

Anonymous said...

Hmmm. I mostly have peace of mind about the decisions I've already made.

Exceptions to that are.....well occasionally I will decide to go off of a long term med because of a side effect. I have learned through one unfortunate experience that it is good to take meds that have been on the market for a while, and that old meds work well too.

And the last thing I will say about that is once after heart surgery I ended up on plavix and aspirin, and then then a few months later it came out that plavix and aspirin are actually pretty potent to take together and sometimes dangerous. I did keep taking them because of my specific circumstance, but I guess I would say I try to consider things again when they come up, but also try not to stress about a decision I've already made peace with, if that makes sense.

Melissa