Wednesday, August 3, 2011

Hi there. Please look at my chest?

I am feeling much, much better.

The full-body pain of last week - a nice little leftover from the muscle relaxant they used before intubation - is gone. I also got my bandage off yesterday morning, and the incision appears to be healing nicely. And, I'm feeling less  anxious now that I'm up and doing things for myself again. Still tired and a bit blue, but I am working hard at taking care of myself, getting enough sleep and relaxing.

The only thing that's really bothering me is the placement of the new ICD. When I received my first defibrillator, I asked for it to be implanted under the pectoral muscle. This meant more pain and a longer recovery, but the device was nicely tucked away and not very visible. When the surgeon put in the replacement last week, though, he decided to hide it under breast tissue instead. He explained afterward that submuscular implants are becoming rare now that ICDs are so much smaller, and that he wanted to ensure easier, less painful surgeries down the road.

I get that. I know he was doing what he thought was best. And I know that the placement of the device wasn't the thing on everybody's mind. Lead extraction can be complicated and risky, and I'm so grateful that my surgeon got everything out neatly and without nicking anything important. Dr. Sneakers informed me beforehand that the team would have to "get out all their open heart surgery tools" just in case, and I'm very happy we didn't need them.

But this thing is basically in my breast. It's lumpier, and I think more noticeable, than before. Not so helpful for someone who is already a bit self-conscious about her (enormous) chest. Now it's enormous AND lumpy. And of course, I wasn't planning on surgery this summer, on having to make a decision about a new ICD. I wasn't planning on having to think about these things.

I hope I'll feel better about it once it doesn't hurt anymore. I hope it settles in soon and doesn't feel so foreign. And I hope somebody looks at it and tells me it's no big deal.

I suppose if I ever had a reason to go around flashing close friends, this would be it.

5 comments:

Anonymous said...

Helen,

I'm so glad you're O.K. As you know I have a pacemaker, and I've just started working as a heart transplant social worker so have been meeting all kinds of people with ICDs. I also know a lady who started with a pacer when she was young, but who moved to an ICD eventually so I wonder about myself.

My pacer is way under my pectoral muscle. I was awake for the 3 1/2 hr. surgery. It was painful, and they only got one lead in. Now I'm very happy where it's at, and I wonder if I ever need another lead, or battery, if I will like how they put it.

Hang in there! I just had open chest surgery myself and my arthritis kicked into a nasty flare. It's finally calming down again, but I'm sure having both things makes the other a bit more difficult to deal with.

Take care,
Melissa

Helen said...

Hi Melissa,

Thanks so much for your comment. I love hearing from you! (You should start a blog!) :)

I was really happy with the sub-pec placement of my first ICD. I managed to sleep through that surgery, even though I was only sedated. And it was definitely quite painful after, but worth it, I thought.

Oh well. I'm trying to be reasonable about the way it looks now. It's not horrible, and I don't think other people really notice it, but I'm still disappointed.

I hope you're resting up and taking good care of yourself after your surgery. I seem to have flared up a bit, too - I suppose arthritis just doesn't respond well to all that stress.

Take good care of yourself and get lots of rest!

Helen

Polly said...

Hi Helen,

So glad you're OK now - what an awful chain of events; you REALLY didn't need any of that. ;-(

Don't know anything about ICDs so can't really comment helpfully, but I'd guess the only person who notices the difference in shape is you ... and the next one will probably be even smaller but let's hope that's a long, long time away!!

britta said...

Whoa, Helen....I have been so out of touch this summer on the blog-front!

I hope you are doing better....

My heart started racing just reading your posts, so I can't imagine what you went through.

Sending you my thoughts!

Helen said...

Thanks Polly and Britta!

Feeling even better this week. Aside from the incision area, I feel totally back to normal!